Archive for October, 2009

A Big Update on Surgery

We spent 4 hours at the hospital this morning doing pre-op work, getting her signed in as a patient and getting X-rays taken and blood drawn. Then about 5 minutes after walking in the door at home we got a call from the hospital telling us that an emergency surgery had come in and Veronica is being bumped to Friday.  She won’t be having surgery until Friday, November 6th at 7:30 in the morning.

And one more piece of information: because of the H1N1 virus, we are only allowed 4 visitors the entire time she is in the hospital. So the grandparents will be able to see her but nobody else will be allowed to visit her at all during her entire stay. Just wanted to let you know in case you were planning a visit with white castle cheeseburgers in tow.

So stay tuned…we’ll be on pins and needles until Thursday night praying that our phone doesn’t ring!

Luigi Veejie

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Veronica and her BFF Halle had a Halleween party this week. Veronica went as Luigi and Halle went as a bat (in a gorgeous handmade costume no less).

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Veronica thinks she hit the motherlode with all the tasty treats she got to eat at the party. She has no idea what she’s in for on Saturday at her first trick or treat outing!

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Daddy’s Little Helper

Veronica is in a stage right now where she likes to help clean things. Her definition of cleaning is a bit different from ours, but it’s still fun to watch her try. Even when letting her help means the mess is twice as big when she’s done.

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Enjoying A Perfect Fall Day

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When One Just Isn’t Enough

I let Veronica play by herself in her room this morning and when I walked in to check up on her, this is what I found:

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Nick & Nora Pajama Sets for Toddlers

In some countries it’s illegal to be this cute at bedtime.

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21 Months…and an update

She turned 21 months yesterday! She is outgrowing all of her pajamas and now when we put her on the changing table her legs are so long she kicks everything off of it.

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We met with the surgeon today.  We really liked him. I half expected that the picture on his bio page would be twenty years old like most doctors, but no, he really is in his thirties.

He stressed again how quickly little children recover from this surgery and how standard of a surgery it is. The biggest risk associated with the surgery only has a 3% chance of happening, whereas the chance of something even worse happening without the surgery is almost certain. They have learned from decades of experience that the best thing to do is fix it early in life.

He is going to do a transverse cut, meaning it will be a horizontal line, and it should be low enough that she will be able to wear a low cut blouse (As if we will ever allow that) without a visible scar. Unfortunately with that kind of cut, he does have to make a bigger incision than if he went in vertically, so her scar will be bigger. But it will be less noticeable in the every day world.

He is going to fix the second, smaller hole as well (her ASD) while he is in there. That was a welcome surprise to me. Glad he’s going to get it all done at once.

She will be on the heart-lung bypass machine for an hour and a half. They are going to repair the VSD by patching it with a piece of synthetic material called Dacron. He will use part of the lining of the outside of her heart to stitch up the ASD.

The biggest risk associated with this surgery has to do with the steadiness of the surgeon’s hands. Because the defect is located very close to the conductive tissue, there is a chance that the conductive impulse area may be injured during the stitching process and not be able to carry out normally. If this happens, a pacemaker is put in. Usually it will heal within a few days and the pacemaker can come out. In the most extreme cases, a permanent pacemaker will be put in. But this risk is only about 3%.

While we were in the heart department we saw several parents with babies in infant carriers and it reaffirmed to me how fortunate we have been in Veronica’s situation. We have been able to wait until just the right time to perform this surgery and we have a great medical staff attending to her. We’re lucky to live so close to such a great medical complex. I’ll give another update after our 2nd meeting at the end of next week.