Surgery Postponed!

We had a great meeting with the cardiologist today. The 22 calorie formula worked like a charm and Veronica gained 9 ounces in 1 week!

Weight-wise, she started out at the 50th percentile, then dropped to the 25th, and when we had her weighed last week she had dropped again to the 20th. But with this huge weight gain this week she is back up to 25%. As long as we stay on the 25% arc, everything is good. The doctor is very pleased and we are going to continue with this high-calorie formula plan. She is still getting breastmilk too but after seeing such a dramatic difference in the formula versus breastmilk, we may start the weaning process and break out the freezer stash. By using pumped breastmilk we can add extra calories to it so that she is consistently getting high calorie meals.

Her murmur is still a grade 4, meaning that her heartbeat is very loud and has a “thrill“, which is a tremor or vibration that can be felt. If you ever get the chance to put your hand on her heart, you should do it.

The excellent news is that the cardiologist feels that Veronica is now in a holding pattern and that we can be more conservative regarding her surgery. We can go back to waiting a while so as to give her brain more time to develop for going on the heart-lung machine.  Her liver is still enlarged and lungs are too but he feels we are still better off in the long run waiting as long as possible to decrease the surgery risks. We will do another weight check in 3 weeks to see if she is still doing well on the food plan and we will see the cardiologist again in May to make sure she is still doing ok.

On a funny note, Veronica was referred to as being ripped today. (The doctor was commenting on how he has a few patients with her long and lean body type and how they don’t have the rolls and cellulite like other babies, but instead have six packs by 1 year of age and are doing pilates.)

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4 Responses to “Surgery Postponed!”


  1. 1 christin April 11, 2008 at 1:29 pm

    She has a six-pack!!!!! doing pilates!!! i’m dying. DYING i tell you.

    and I love that she is “in a holding pattern”. She doesn’t even know how lucky she is to have such a great writer for a mom.

    Yay for postponed surgery. and I really hope I get to feel her heart before she has the surgery – can we arrange that????

  2. 2 chuck April 11, 2008 at 3:07 pm

    wow, this is amazing, amazing news. hooray for high-calorie diets!

  3. 3 kljderrick April 11, 2008 at 7:23 pm

    Little Veronica is ripped! That is so great! I am so glad about her weight gain – bring on the formula!

  4. 4 Grandma Linda April 14, 2008 at 1:39 pm

    Her grandpa and I are so glad that she is gaining weight! Holding pattern wounds terrific as long as it works out for your insurance situation too. Of course we want what is best for Veronica and her parents. So glad about this latest news.

    Love ya,
    Grandpa and Grandma Derrick


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